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Organisation: Huntington Society of Canada - Huntington Disease Resource Centre - Marilyn Mitchell, Director, East Central Ontario  
Numéros de téléphone: 905-426-4333
Sans frais: 1-855-426-4333
Télécopie: 905-426-4333
Adresse courriel: mmitchell@huntingtonsociety.ca
Site Web: www.huntingtonsociety.ca
Adresse postale:
PO Box 103
Ajax, ON
L1T 3A6
Adresse:
71 Old Kingston Rd
Ajax
 
Point géographique: Ajax (Central)
Accessibilité: Accessible en fauteuil roulant    Accessible en fauteuil roulant
Heures d’ouverture: Tue, Wed, Thu 8:30am-5pm
Personnes-ressources publiques: Marilyn Mitchell - Director
*
Description des services: Provides support to individuals with Huntington Disease (HD), persons at-risk, persons who are gene-positive, caregivers and family members, community members, friends and neighbours.

Services are provided locally through a Resource Centre Director covering East Central Ontario and includes information and education, short-term counselling, resource counselling and referral, and individual advocacy.

Support groups are currently held in Whitby and Peterborough.

A virtual chapter of HSC called YPAHD (Young People Affected by Huntington Disease), provides a community and support network specifically for youth. A new mentorship program is now available to link youth, aged 12 and older, with a trained, volunteer mentor who understands the challenges of growing up in a family affected by HD.

Education and consultation is provided to health, social service and community workers involved in the care of an individual affected by Huntington Disease.

Call the national office to learn more about Huntington Disease clinical trials at 1 800 998 7398 or www.hungingtonsociety.ca

Réunions: Support groups in both Whitby and Peterborough * Durham Region (durhamregionhd@gmail.com) and Peterborough (ptbohd@gmail.com) chapters are run by volunteers who meet regularly to plan and host fundraising activities, community events and to raise awareness of Huntington Disease in their local communities * new members always welcome.

Monthly support meetings are facilitated by a social worker and are open to anyone affected by, or caring for someone with, Huntington Disease. To register, contact the Resource Centre Director at 1 855 426 4333.

Annual fundraising walks are held in Peterborough and Durham Region during Huntington's month in May
Frais: No fees
Langues: English
Zone(s) desservie(s):
Durham Region, City of Peterborough, Kawartha Lakes, Haliburton and Northumberland Regions.  
Voir aussi: Groupes de soutien pour maladies et conditions
Maladie de Huntington

Les présents renseignements ont été entièrement mis à jour le août 28, 2018

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© 2018, Réseau local d'intégration des services de santé du Centre-Est

Mis à jour août 28, 2018
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