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Organisation:
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Huntington Society of Canada - Huntington Disease Resource Centre - Tarak Ahmed, Director, East Central Ontario
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Adresse postale:
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Huntington Society of Canada
20 Erb St W, Suite 801
Waterloo, ON
N2L 1T2
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Notes sur l'accessibilité:
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Services provided virtually or any chosen location
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Description des services:
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Provides support to individuals with Huntington Disease (HD), persons at-risk, persons who are gene-positive, caregivers and family members, community members, friends and neighbours.
Services are provided virtually and throughout Durham Region and Peterborough area through a Resource Centre Director covering East Central Ontario and includes information and education, short-term counselling, resource
counselling and referral, and individual advocacy.
Support groups are currently held in Ajax.
A virtual chapter of HSC called YPAHD (Young People Affected by Huntington
Disease), provides a community and support network specifically for
youth. A new mentorship program is now available to link youth,
aged 12 and older, with a trained, volunteer mentor who understands the
challenges of growing up in a family affected by HD.
Education and consultation is provided to health, social service and community
workers involved in the care of an individual affected by Huntington Disease.
Call the national office to learn more about Huntington Disease clinical trials at 1 800 998 7398 or www.huntingtonsociety.ca
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Réunions:
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Monthly
support meetings are facilitated by a social worker and are open to anyone
affected by, or caring for someone with, Huntington Disease. To register, contact the Resource Centre Director at 1 800 998 7398 ext 207.
Annual fundraising walks are held in Peterborough and Durham Region during Huntington's month in May |
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Zone(s) desservie(s):
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Durham Region, City of Peterborough, Kawartha Lakes, Haliburton and Northumberland Regions.
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